“There is an urban myth that patients with #MECFS benefit from secondary gains. Did you ever consider the negative side: isolation, lost social contacts, ruined career, ruined economy, severe symptoms around the clock—and deprecatory remarks about secondary gains! #MEAwarenessHour” Sten Helmfrid on Twitter
An Effort to Understand the Many Names of ME/CFS
“The term “myalgic encephalomyelitis” was coined by the British physician, Dr. Melvin Ramsay, in the 1950’s when he described an outbreak that occurred in London. It is still used by British and many European specialists instead of the American-coined term, “chronic fatigue syndrome.” – Dr. Charles Lapp “The current CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome diagnostic …
Fatigue is the Last Symptom to Heal
‘The two “never-ending symptoms of CFS” are fatigue and non-restorative sleep. Those two symptoms seem to resolve last when people recover from CFS.’ – Dr. Charles Lapp
CFS: Because Chronic Soul Stealing Was Taken
CFS: Because Chronic Soul Stealing, Mind Numbing, Walking on Broken Glass Exhaustion was already taken…