NIH ME/CFS Newsletter
Volume 1: Issue 2, February 2023
Developing an ME/CFS Research Roadmap
In September 2022, at the National Institute of Neurological Disorders and Stroke (NINDS) Advisory Council
meeting, Walter Koroshetz, M.D., Director of NINDS, announced that a working group of Council will initiate
a strategic planning effort to develop a Research Roadmap for ME/CFS, which will identify research priorities
to move the field toward translational studies and clinical trials. We anticipate that the roadmap will be
presented at the NINDS Advisory Council meeting on February 14-15, 2024.
The working group will include basic and clinical experts from the research community, leaders of non-profit
advocacy and research organizations, and people who are living with ME/CFS, have a family history of
ME/CFS, are caregivers/care partners of people living with ME/CFS, or are ME/CFS patient advocates.