Your Nuts and Bolts Essential Toolkit for Being Bedridden
Resources
Ricky Buchanan: geek-creative-disabled-bedridden-internet-citizen – “Ricky Buchanan is bedridden from Ehlers-Danlos Syndrome, Dysautonomia, Mast Cell Activation Disorder, and Myalgic Encephalomyelitis (“Chronic Fatigue Syndrome”). She has come up with a whole bunch of brilliant and creative ways to use tools and technology to make life in bed more fun.”
Bathroom
Bidet
For shower corners $14.42 but could also be used anywhere https://a.aliexpress.com/_mMlimB2
Bedding
Miracle Sheets with antimicrobial silver $130
Miracle Sheet alternatives that are more affordable on Amazon
Beverages
Insulated drink bottles with caps
Food and Eating in the Bedroom
Bibs – These are large enough to alternate as bibs or “tablecloths” over a pillow, for example.
Dish Drainer Rack – Wall Mounted $6.96. Fantastic way to organize dishes and utensils in the bedroom.
https://a.aliexpress.com/_mNwfipA (5 / 5)
Microwavable and reusable meal prep containers
Microwave
Plates and bowls – disposable but sturdy ones
Ramekins
Refrigerator – I personally recommend a small one, but not as small as the dorm sized one. The mini fridge we put in the bedroom is already too small at times.
Silverware – I’m usually too tired to try and cut some foods with disposable silverware but the spoons and forks are usually easy to use.
Earplugs
Earplugs for side sleepers – 25 decibels
Noise canceling earplugs
Finding volunteers and staff – See Caregivers
Feeding your soul
For Everyone
Art
Beauty
For the Spiritual
Fun
50 Fun Things To Do When Bed Bound/House Bound by Healing Boxes (5 / 5)
Bird feeder – they make ones you can attach to the outside of your window
Lighting
Lamp dimmer that makes any lamp with an incandescent bulb a dimmer
Smart Lights make it easy to control from bed.
Massage
Medications
Organizing – I use a snap lock container to dump my pill bottles in to. (Clearly not child proof – beware!) It’s large enough to keep the pill cutter in as well as these small organza bags I use to separate pills that look too much alike, as well as supplements. Having pills that look too much alike takes too much energy for me when I’m trying to find the right one, otherwise. I have found the bottles themselves to be too much clutter that required too much energy, as well.
Pill Cutter – I’m currently trying this one that will cut multiple pills at a time, which makes it easier to have several already prepped for my bad days.
Miscellaneous
Dental floss
Fan(s)
Flashlight
Heating pad. I love to also use mine as a small lap blanket when I get chilled
Medic Alert bracelet – I love these Italian links to form a bracelet with.
Qtips
Toothbrush – Tooth paste is optional. It’s actually the brushing that does the most work.
Toothpaste – Sensodyne
Organizing
Bungee Cords, Miniature – I prefer the colorful ones like these so I can color code if it’s helpful
Fabulous wall mount shelves at a great price On AliExpress 1 https://a.aliexpress.com/_msi6pXq
ECOCO Shelf $12.31 https://a.aliexpress.com/_mrnhJ6y
For corners $14.42 https://a.aliexpress.com/_mMlimB2
Designed for a hair dryer but should hold my hand held massager as well. $7.95 https://a.aliexpress.com/_mKkHrA4
These should work great over my headboard $11.48 https://a.aliexpress.com/_mqk14Uy
In gunmetal grey $11.98 https://a.aliexpress.com/_msNLRvw
US $4.12 Nordic Wire https://a.aliexpress.com/_mqZQ6Xi
Self-adhesive velcro. Comes in many sizes and I use it for so many different things. (5 / 5)
Retractable key chains with a caribiner, key holder and badge clip. – Amazon. Come in an assortment of colors. I attach my remotes to them. Can be used for anything. I’m giving this 3 stars but only because I didn’t pick ones that are strong enough nor is the cable long enough for me (3 / 5)
Zip Ties – Come in all sizes. Vital for organizing hacks (5 / 5)
Organizing cables
A long wall rack with knobs for hanging at Ikea
Pain relief and Management, See also Patient Resources
Biofreeze
Memory foam mattress toppers – especially important for those with Fibromyalgia as well. (5 / 5)
Pets
Baking soda absorbs odors and soaks up urine.
Blacklight flashlight – reveals any urine spots on a rug. This one on Amazon is strong but affordable.
Pillows
Pure Wow’s list of 9 of the best husband pillows
Urinary Incontinence
Baking soda absorbs odors and soaks up any urine.
Virtual Reality Experiences
Symptom Tracking
Mind Mapping: Although it takes time and energy to track your symptoms it’s one of the primary tools for managing your health and optimizing your doctor’s appointment. One tool I’m currently using (10/15/2022) is Mind Mapping the symptoms and comorbidities. Here’s a list of the top 19 free software Mind Mapping tools.
1 Shipments from AliExpress usually take a month to arrive here East Coast in the USA, twice as long over the holidays. I’ve had some crazy bargains and awesome customer service with them. (5 / 5)