bedridden woman

Your Nuts and Bolts Essential Toolkit for Being Bedridden

Resources

Ricky Buchanan: geek-creative-disabled-bedridden-internet-citizen – “Ricky Buchanan is bedridden from Ehlers-Danlos Syndrome, Dysautonomia, Mast Cell Activation Disorder, and Myalgic Encephalomyelitis (“Chronic Fatigue Syndrome”). She has come up with a whole bunch of brilliant and creative ways to use tools and technology to make life in bed more fun.”

Bathroom

Bidet

For shower corners $14.42 but could also be used anywhere https://a.aliexpress.com/_mMlimB2

Bedding

Miracle Sheets with antimicrobial silver $130

Miracle Sheet alternatives that are more affordable on Amazon

Beverages

Insulated drink bottles with caps

Food and Eating in the Bedroom

Bibs – These are large enough to alternate as bibs or “tablecloths” over a pillow, for example.

Dish Drainer Rack – Wall Mounted $6.96.  Fantastic way to organize dishes and utensils in the bedroom.
https://a.aliexpress.com/_mNwfipA 5 out of 5 stars (5 / 5)

Microwavable and reusable meal prep containers

Microwave

Plates and bowls – disposable but sturdy ones

Ramekins

Refrigerator – I personally recommend a small one, but not as small as the dorm sized one.  The mini fridge we put in the bedroom is already too small at times.

Silverware – I’m usually too tired to try and cut some foods with disposable silverware but the spoons and forks are usually easy to use.

Earplugs

Earplugs for side sleepers – 25 decibels

Noise canceling earplugs

Finding volunteers and staff – See Caregivers

Feeding your soul

For Everyone

Art

Beauty

For the Spiritual

Fun

50 Fun Things To Do When Bed Bound/House Bound by Healing Boxes 5 out of 5 stars (5 / 5)

Bird feeder – they make ones you can attach to the outside of your window

Lighting

Lamp dimmer that makes any lamp with an incandescent bulb a dimmer

Smart Lights make it easy to control from bed.

Massage

Medications

Organizing – I use a snap lock container to dump my pill bottles in to.  (Clearly not child proof – beware!)  It’s large enough to keep the pill cutter in as well as these small organza bags I use to separate pills that look too much alike, as well as supplements.  Having pills that look too much alike takes too much energy for me when I’m trying to find the right one, otherwise.  I have found the bottles themselves to be too much clutter that required too much energy, as well.

Pill Cutter – I’m currently trying this one that will cut multiple pills at a time, which makes it easier to have several already prepped for my bad days.

Miscellaneous

Dental floss

Fan(s)

Flashlight

Heating pad.  I love to also use mine as a small lap blanket when I get chilled

Medic Alert bracelet – I love these Italian links to form a bracelet with.

Qtips

Toothbrush – Tooth paste is optional. It’s actually the brushing that does the most work.

Toothpaste – Sensodyne

Organizing

Bungee Cords, Miniature – I prefer the colorful ones like these so I can color code if it’s helpful

Fabulous wall mount shelves at a great price On AliExpress 1 https://a.aliexpress.com/_msi6pXq

ECOCO Shelf $12.31  https://a.aliexpress.com/_mrnhJ6y

For corners $14.42 https://a.aliexpress.com/_mMlimB2

Designed for a hair dryer but should hold my hand held massager as well.  $7.95  https://a.aliexpress.com/_mKkHrA4

These should work great over my headboard $11.48 https://a.aliexpress.com/_mqk14Uy

In gunmetal grey $11.98 https://a.aliexpress.com/_msNLRvw

US $4.12 Nordic Wire https://a.aliexpress.com/_mqZQ6Xi

Self-adhesive velcro.  Comes in many sizes and I use it for so many different things.  5 out of 5 stars (5 / 5)

Retractable key chains with a caribiner, key holder and badge clip. –  Amazon. Come in an assortment of colors. I attach my remotes to them.  Can be used for anything.  I’m giving this 3 stars but only because I didn’t pick ones that are strong enough nor is the cable long enough for me  3 out of 5 stars (3 / 5)

Zip Ties – Come in all sizes.  Vital for organizing hacks 5 out of 5 stars (5 / 5)

Organizing cables

A long wall rack with knobs for hanging at Ikea

Pain relief and Management, See also Patient Resources

Biofreeze

Stopain

Memory foam mattress toppers – especially important for those with Fibromyalgia as well. 5 out of 5 stars (5 / 5)

Pets

Baking soda absorbs odors and soaks up urine.

Blacklight flashlight – reveals any urine spots on a rug.  This one on Amazon is strong but affordable.

Pillows

Pure Wow’s list of 9 of the best husband pillows

Urinary Incontinence

Baking soda absorbs odors and soaks up any urine.

Virtual Reality Experiences

Symptom Tracking

Mind Mapping:  Although it takes time and energy to track your symptoms it’s one of the primary tools for managing your health and optimizing your doctor’s appointment.  One tool I’m currently using (10/15/2022) is Mind Mapping the symptoms and comorbidities.  Here’s a list of the top 19 free software Mind Mapping tools.

 

 

1 Shipments from AliExpress usually take a month to arrive here East Coast in the USA, twice as long over the holidays. I’ve had some crazy bargains and awesome customer service with them. 5 out of 5 stars (5 / 5)