See also Patient Resources
The Bateman-Horne Center’s Guidebook Resource Center for ME/CFS – Includes many different guides but uniquely – and awesomely – it also includes 5 different categories of printable Communication Cards for the most severely disabled. They can communicate by pointing. Highly recommend 
(5 / 5)
Caring for Someone with Severe Myalgic Encephalomyelitis
Blogs
CFS Patient Advocate – Although this site hasn’t been updated since October 2021 there is still a great deal of valuable information available.
Dysautonomia
The Dysautonomia Project’s definitive guide is a “much-needed tool for physicians, patients, or caregivers looking to arm themselves with the power of knowledge. It combines current publications from leaders in the field of autonomic disorders with explanations for doctors and patients about the signs and symptoms, which will aid in reducing the six-year lead time to diagnosis.”
Educational
Missing My Life video by the CDC shows a woman with ME/CFS and what her life is like as she goes through part of her day. It shows some of the everyday events that she misses as she manages her illness. Only 30 seconds and easy to watch. On YouTube.
My Relative is Sick by Healing Boxes
Handouts and Checklists
ME/CFS educational tools to help patients, their families, and caregivers manage their healthcare provider visits by the CDC (Center for Disease Control). Includes handouts and checklists for preparing to talk to a provider, for the day of the office visit, after the office visit and general hints, tips and tricks.
Patient Toolkit by the CDC. ME/CFS educational tools to help patients, their families, and caregivers manage their healthcare provider visits. Includes 6 different PDF printables.
Introductory Guides
MEAction’s Primer for family, friends and care providers
What is ME/CFS? (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) by Broken Battery on YouTube
Pediatrics
A Case Definition for Children with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
A Parents’ Guide to CFIDS: How to Be an Advocate for Your Child with Chronic Fatigue Immune Dysfunction written by Dr. Davis S. Bell, developer of the CFIDS Ability Scale. While the research is hopelessly outdated since it’s release in 1999 it covers a lot of topics still important to parents.
https://kidshealth.org/en/parents/cfs.html
ME/CFS in Children by the CDC
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer by Frontiers in Pediatrics
New Pediatric Pacing Guide by MEAction
Pacing and Management Guide for Pediatric ME/CFS and Long Covid by MEAction
Dr. Peter Rowe, MD, Pediatrician1 , Professor of Pediatrics at Johns Hopkins University School of Medicine, Division of General Pediatrics and Adolescent Medicine “Widely known as an expert in Neurally Mediated Hypotension and Chronic Fatigue Syndrome in children and adolescents.”
https://www.actionforme.org.uk/support-others/your-child-and-me/support-for-parents/
YouTube
Dr. John Chia talks about chronic enterovirus infection in ME/CFS on YouTube