Support Groups

Solve ME/CFS Intiative – http://solvecfs.org  “The Solve ME/CFS Initiative (SMCI) has been the leading organization focused on myalgic encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) since being founded in 1987. SMCI seeks to actively engage the entire ME/CFS community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding towards a cure. Credit: Hope for fatigue

National CFIDS Foundation – http://www.ncf-net.org  “The Foundation’s objective is to fund research to find a cause, expedite treatments and eventually a cure, as well as providing information, education, and support to people who have CFIDS (chronic fatigue and immune dysfunction syndrome also known as chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME) and many other names). ”

PANDORA (Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy) – http://www.pandoraorg.net “PANDORA is a grassroots advocacy organization that promotes awareness of ME/CFS, Fibromyalgia, Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) and chronic Lyme disease. PANDORA cooperates with other patient organizations to advocate for physician education,increased government-funded research and government policies that make advancement in improving patients’ quality of life.” – Credit: Hope for fatigue

The Institute for Neuro Immune Medicine at Nova Southeastern University in Florida – the Institute for Neuro Immune Medicine is a premier research and treatment center for Chronic Fatigue Syndrome and other related Neuro Immune Disorders. Diseases such as Human Immunodeficiency Virus (HIV/AIDs), fibromyalgia, autism spectrum disorder, lyme disease and Gulf War Syndromes are some of the illnesses that are treated at the Institute.” 

https://www.s4me.info/ “Where science and the ME/CFS community meet”

Facebook

25% of ME: Support Group for Severe CFS/ME – “25% of ME: Support Group for Severe CFS/ME Is a private, international, support group for ME/CFS patients who are housebound and/or bedbound folk with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (and their caregivers). ME/CFS patients in our group are generally too ill to work. Some get out of the house once in a while, others are barely able to move. This is a fluctuating, spectrum illness.” (5 / 5)

Meetup

https://www.meetup.com/find/?keywords=chronic%20fatigue

https://www.meetup.com/richmondfibrosupport/

Canada

Canadian ME/CFS & FM, Cervical Spine Issues: Patient Support Group This group is described as including a list of recommended doctors.

United Kingdom

https://meassociation.org.uk/local-support-groups/

USA

Virginia

CFS NOVA Meetings – ‘The Northern Virginia Chronic Fatigue Syndrome / M. E., Fibromyalgia, and Orthostatic Intolerance Support Group is an informal group that has been meeting in Fairfax County, VA, for over 20 years. Members discuss issues relating to CFS, FM, and chronic illness and healing in general.”

Fibromyalgia Fight Club – Book Club & Support Group

Virginias Highlands Fibromyalgia Association was last updated in 2007

The Richmond Fibromyalgia and Chronic Pain Association last updated 2019